良医妙药

一个父亲为了治愈一对儿女的 Pompe 症, 不惜抛弃现有的稳定生活, 去医疗领域孤注一掷地创业, 最后攻克此难题. 本来就是以催泪见长的美式亲情片加上孤儿病这种设定, 简直是心灵鸡汤灌顶到犯规的地步.

然而, 抛开这个父亲以及家庭不谈, 就这个博士, 也就是题图中右边那个花白头发的老头的形象塑造颇为有意思: 第一次出场, 他接患儿父亲打来的电话, 我想任何一个观众可能都会觉得很奇怪, 为什么不好好接电话, 非要折腾一下把电话线玩脱; 第一次见面, 把对方晾在外面一下午; 下班之后径自去酒吧看球, 还被跑堂的奚落 "我以为博士是你的绰号", 相形之下即使是鲁迅笔下的孔乙己大抵也得让他三分. 这种颓废的生活表象背后的原因很容易理解: 常年在冷门领域搞研究, 几乎没有同事或上司支持, 研究经费还会被砍.

其实这点仔细想想, 与孤儿病的境遇还真是很相似, 一个是冷门的病, 没公司愿意投钱开发药; 一个是冷门的研究方向, 没学校愿意投钱研究理论. 而不同的是, 得不得病是没法选的事情, 而冷门研究嘛, 只能硬着头皮搞下去, 烦躁时骂一句, 当年还以为这东西会火, 真是坑死爹了.

在一着不慎满盘皆输的科技领域, 电影里这一个好歹是最后成功了, 谁知道有多少失败的案例倒在黑暗中呢? 本片里博士的性格塑造还是很能体现的, 长久的压抑生活, 两次离婚, 使得他后来即使受到重视成为骨干, 与其它同事相处也非常糟糕. 无论片尾如何描述他兑现了支票, 还自己开了公司笔者觉得都是无关紧要的, 他是否能真正在工作中找到快乐, 是否能正视研究过程中的低谷, 是否能冷静对待他人的苛责才是值得一书的. 倘使还是这样自卑暴躁的脾气, 那真是无可救药了.

Is it a blessing?

When the Doctor told Mr Crowley that we had done our best,i'm sorry .But maybe u could take it as a blessing for ur daughter finally get rid of the suffering. At the moment i was thinking the doctor is right. Death is much better than endless pain ,especially when urself is not only the one who is suffering but ur loved ones as well. Maybe this is the best ending, a blessing. However, John and Aileen were silent without a saying anything. Then i suddenly realize that was cause they know at that moment under such circumstance, any single word would be capitulation to death as well as a betray to their beloved daughter. They havd confidence in her just like the little girl had in herself. They just knew that she can make it, they all wanna a miracle.

Megan and Patrick are born with the rare disease of Pompe. They are children born to be die. Their life expectancies are estimated much shorter than normal people.For most of their lives,they are bound to a chair, supported by a respiratory system. They've been deprived of running with laughter and joy and all sorts of games played among other children. However, what can be called as a blessing is that they have got the greatest parents in the world .Their love, to some extend, is incomparable.

When Megan's life was jeopardized and lying in the ICU, her desperate father ,Mr Crowley just threw away all his responsibility and flew thousands miles across to save her little daughter's life. He wanted to make a miracle himself.

This decision was crazy and totally out of desperation, it's far beyond the father-love u can ever imagine. When his rushed out from his office where a important meeting was on the go, without telling her wife a single word about his plan, he was ready to take the risks and sacrifice all he owns to save her daughter. He knew that if he ruined the meeting he would lose his job, and , the children's health care. That means they'll have no money to gain treatment which will sustain their lives.

It's too risky, especially, when u even know nothing about who u can turn for help, where exactly he is, whether or not he will help u, how he can help and what the results are. The desperate father just want to have a try without a moment's hesitate. Because he knew, if u just sit there and wait, there will never be a miracle taking place itself. Miracles are been made by our own hands.

Then, fortunately or not, whatever u say, Mr Crowley found this eccentric and stubborn old man--Professor Robert Stonehill. Its not a easy job to get along with him. Let alone start a tough business with him. He has the cure to save Megan and Patrick, that's why such a weird man finally became a blessing to The Crowleys. The way to save lives is not smooth, even much stiffer than u can imagine. But just like any other courageous heroes and encouraging stories, the movie got a happy ending. A blessing, u may call it, endowed by love and persistence.

Blessing, we can make it.

这部电影让人回味，咋看并没有帅哥美女，没有哭天抢地，可是看完以后会反复想起那个乐观自信的小女儿，那个顽强执着的爸爸，那个死要面子的科学家。。。当然，还有那个瘦瘦的充满爱心教育有方的妈妈。

对生命的爱和执着，生命本身的巧妙神奇，商业体系无情却反哺科技的前进。。这一切让人感叹。

这部影片展现了很多面，总体来看并没有特别激烈的情节和波澜壮阔的情怀，但是淡淡的展现出来的是爱和温情。

科学家倔强，难以沟通，死要面子，最后终于也自称Uncle Bob。。爸爸帮6岁的儿子丢面包喂鸭子；妈妈温柔地讲海绵宝宝的故事，但是三个孩子一旦吵闹绝对一视同仁，纪律严明。女儿最强悍，在同学们面前依然像个小公主一般，根本就看不出来身患重病，她相信她的爸爸会造出神奇的药来治好她和弟弟，并且下命令说要做成深粉红色，因为浅粉红色是给婴儿的，她已经长大了！

生命是神奇的，所有基因信息是复杂而有序的，一旦出现丝毫的偏差，生命就危在旦夕，就像让片中父母们忧心的Pompe Disease。影片最后两个孩子天正无邪的笑声让父母愕然，原来那是Suger High，体内多余的糖分终于被分解了，孩子们自然的High。这是生命的喜悦。

父母对孩子的爱是纯粹而强烈的，我们深知这一点但依然喜欢被一遍又一遍的真实诠释所感动。小女儿曾对爸爸说，You‘re a business man. 这句话在我看来略带贬义，商人总是无情，就像随后的情节展现出医药研发企业的冷漠无情和逐利本质，可是当那个高层最后说了一句，我不喜欢别人说我heartless，我们也终于看到他内心被真情所动。因为伟大的爱，奇迹来临。

最后想说说商业，有时候觉得商业实在是有违人性，假如有人怀着仁慈去经商，必将输掉最后一寸立足之地，所以牛人们总是残酷的赚了海量的钱，然后做一点慈善。就像做财务要搞收支两条线，如果坐支，就会把自己都confuse掉。我讨厌嫌贫爱富的金融业，我讨厌残暴虚伪的所谓高级职业经理人，可是我也不得不承认就是这种竞争和厮杀推动了社会的进步，包括科技的应用。就像影片中的医药公司，他们的产品终究还是拯救了患病儿童，虽然这种产品的目的只是钱。钱是“万能”的，不是全能的而已。钱是一种手段，一个支点，就看我们能够撬动怎样的意义。

感谢这部影片给我带来的感悟。Let's make it pink, the hope, the life, the love.

《不存在的女儿》The Memory Keeper's Daughter属同类型电影 很容易理解这个电影，其实是没有希望也不可治疗的。每个人都有自己的基因缺陷，只是对人体的影响强度不一样。人吗为爱而生存，现在的社会生存压力太大把人都弄的心理畸形了，我感觉这个比疾病更可怕。

情节是好莱坞式的，表演基本到位，并不出彩。但为什么“力荐”呢，因为，这实在是本难得的非常好的职场片。我看到的是剧中人物对“本职”的理解、坚持、碰撞与不放弃。

在父爱、孩子的乐观、公司的“无情”、科学家的要面子之外，影片非常非常好的讲述了人与情、情与法的各种矛盾，并通过强烈的不停的碰撞，最终找到出路的故事。每个人的环境，职责各不相同，都有着各自不同的目标，而做为同一个项目来说，也就无法避免有了各种摩擦与矛盾。剧中每个角色各尽本职，只把自己角色或职位所要求自己做的，努力做到满分。为此摩擦，强烈碰撞，没有妥协，没有放弃。没有谁对谁错，只有各种精彩。这大概是片子中我看到的最迷人之处。

有这么强烈的感受，是因为，工作中，我时常以无思想的“妥协”来处理各种矛盾，看完影片，深刻认识到以往工作中的”一团模糊“，我要改变，做好本职！

有个朋友的女儿得了这种病，Pompe病（庞培氏病），大家都很难过，没想到还有有这样一部电影，大家都在想办法，据说只有美国这种药能治，去美国治疗目前不太现实，不知道另外还有什么渠道能治呢？唉，，，